EDIS Symposium 2019: Inclusive Research and Experimental Design

On September 9th, 2019 we will be holding our second EDIS symposium. The Francis Crick Institute will host a day dedicated to the concept of inclusive research and experimental design.

About this Event

Research to improve human health should aim to create equal and better health outcomes, from biomedical research through to clinical trials. This symposium will take the concepts of Equality, Diversity and Inclusion and look at how these are applicable to research and experimental design, aiming to investigate ideas around the sex of cells and animals used in research, the ethnicity and ancestry of participants in genome sequencing projects, the diversity of participants in clinical trials and inclusive public involvement in research.

This event is aimed at biomedical, medical, preclinical, clinical and health researchers, as well as funders and policy makers. There will be talks from researchers in the relevant fields as well as discussion and panel sessions on practicalities and implementation.

If you have any further requirements or just want to check anything, feel free to email contact@edisgroup.org

This symposium is free to attend, however if your presence is dependent on covering exceptional costs (such as care support) that would not normally be covered by your employer or grant, please get in touch as we have a small budget to help with this (UK only, reimbursement upon receipt).

Programme

• 9.30-10.00 Registration and refreshments

Session 1 (Whole Auditorium)

• 10.00-10.05 Welcome (Crick)
• 10.05-10.15 Introduction (EDIS)
• 10.15-10.50 Diversity, decision-making and biomedical bubbles – Professor James Wilsdon
• 10.55-11.15 Inclusive research priority setting – Katherine Cowan
• 11.15-11.40 Break (refreshments served)

Session 2 (Split Auditorium)

• 11.40-12.40
  Auditorium 1: The sex and gender dimensions in research – Professor Robin Lovell-Badge, Dr Natasha Karp, Dr Inés Pineda-Torra
  Auditorium 2: Diversity in clinical trials and AI – Dr Anya Harry, Peju Oshisanya, Dr Mohammed Kamran

Session 3 (Split Auditorium)

• 12.45-13.45
  Auditorium 1: Ethnicity and ancestry in genomics – Professor Ewan Birney, Dr Emma Baple, Jerome Atutornu
  Auditorium 2: BAME participation in health research – Naina Patel, Toni Brasting, Farrah Nazir
• 13.45-14.45 Lunch and stalls from EDIS members: The Crick, GSK, Wellcome, The Academy of Medical Sciences, Association of Medical Research Charities, AstraZeneca, Babraham Institute, Benevolent AI, Biochemical Society, British Pharmacological Society, Daphne Jackson Trust, Elizabeth Blackwell Institute for Health Research, EMBL-EBI, Wellcome Sanger Institute and Connecting Science

Session 4 (Whole Auditorium)

• 14.45-15.15 Involved research communications – Dr Bella Starling, Cassie Wilson, Grace McCorkle
• 15.20-16.10 Gendered Innovations – Professor Londa Schiebinger
• 16.10-16.15 Closing remarks (EDIS)
• 16.15-17.00 Drinks and networking

Speaker affiliations

• Professor Londa Schiebinger, Director of the EU/US Gendered Innovations in Science, Health & Medicine, Engineering, and Environment project, Stanford University
• Professor Robin Lovell-Badge, Group Leader – Stem Cell Biology and Developmental Genetics Laboratory, The Francis Crick Institute
• Professor Ewan Birney, Director of the EMBL-European Bioinformatics Institute
• Dr Anya Harry, Global Lead for Clinical Trial Diversity, GSK
• Dr Bella Starling, Wellcome Trust Engagement Fellow and Director of Public Programmes at Manchester University NHS Trust
• Grace McCorkle, Public Contributor
• Professor James Wilsdon, Professor of Research Policy, University of Sheffield
• Peju Oshisanya, Director for Clinical Program Management, BenevolentAI
• Dr Natasha Karp, Associate Principal Scientist – Statistician, AstraZeneca
• Dr Mohammed Kamran, CEO & Medical Director, Future Genetics Limited
• Dr Inés Pineda-Torra, Associate Professor in the Division of Medicine, UCL
• Dr Emma Baple, Senior Lecturer in Genomic Medicine, University of Exeter; Consultant Clinical Geneticist, Royal Devon and Exeter Hospital
• Katherine Cowan, Senior Adviser, James Lind Alliance
• Naina Patel, PhD candidate (Conceptualisation of Dementia in Black, Asian and Minority Ethnic multi-generational communities), De Montfort University Leicester
• Toni Brasting, Strategic Design & Innovation Manager (Public Engagement ), Wellcome
• Farrah Nazir, Strategic Design & Innovation Manager (Public Engagement), Wellcome
• Jerome Atutornu, PhD candidate (The Problem Space: Equity in Genomic Medicine and Research Globally),Society and Ethics Research Group; Connecting Science, Wellcome Genome Campus